Amazing Proton Beam Therapy coming to Mayo

Two new Proton Beam Therapy (PBT) centers will be added to those already operating around the country.  CLICK IMAGE

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Positively brilliant! The four-minute animation video gives an overview of this fantastic technology. click image to view.

We received a Mayo publication newsletter reporting that Proton Beam Therapy (with pencil beam scanning) will be available in Rochester in the summer of 2015 and in Arizona in 2016.  According to Mayo, this new more precise technology can avoid damaging tissues surrounding tumors.  They write, “The proton stops after hitting the target.”  This therapy can reach tumors deep within the body.

  Anderson Cancer Center in Texas also has this technology. “MD Anderson is currently using pencil beam scanning to treat cancers of the prostate, brain, base of the skull and eye. As the technology evolves, pencil beam will ultimately be applied to any tumor site where proton therapy is used, particularly for treating solid tumors in children, who are generally more sensitive to the adverse effects of radiation.”

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Image from Mayo Clinic website Rochester and Arizona will both have four treatment rooms.

Who has access to protons?  The Loma Linda VA has (had?) clinical trial for proton beam for HCC but I don’t see much information on the website yet. Medicare covers some treatments.  The VA’s purchased care office could be queried if you are interested.  CHAMPVA Policy Manual approves different types of radiation therapies including proton beam for prostrate cancer (Section 30:13–accessed today). Private insurers are not covering some proton beam cancer treatments, according to these articles in the LA Times (8/28/13) and Kaiser Health News because they are more expensive than standard radiation.  However, a glance at the graphic below, clearly illustrated the desirability of the highly targeted beam.

There are fourteen proton centers in operation in the United States now.  Men will be interested in learning how to fight private insurance denials for prostrate cancer look here.

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This graphic is from Provision Center for Proton Therapy in Knoxville.

Cancers that can be treated with PBT:  Bone Cancer; Brain Cancer; Eye Cancer; Head and Neck Cancer; Hodgkin ; Lymphoma; Lung Cancer; Pancreatic Cancer;  Pediatric Cancer;  Brain Tumors;  Pediatric Sarcoma;  Retinoblastoma; Neuroblastoma;   Lymphomas;  Other Rare Tumors;  Prostate Cancer;  Sarcoma.

 

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Strong words from Sen. Bernie Sanders regarding Gilead’s drug pricing in written testimony

Topic:  Senate Committee on Veterans’ Affairs, Hearing:  Hepatitis C Medications.  December 3, 2014, 11:30 a.m.. LINK–video doesn’t start until 21:41.  The video content varies from the written testimony (Link below). I believe that viewing the video will be a worth your time.  I give the hearing:starsThe lawmakers questions are commonsensical (no grandstanding) and the panelists are given time to answer them.  

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There are also a number of interesting facts in Senator Sander’s written statement (4-pages here):  I learned that we the taxpayers (via the federal government) helped the lead researchers develop the drug with $18 million dollars when it was Pharmasett (now known as Solvaldi).  Then the developers sold it to Gilead for $11 billion.   They expect to make about $200 + billion on this investment in a very short time because the medication costs an “astounding” $1,000 a pill or $84,000 for a 12-week treatment.  The VA has negotiated a discount yet still pays $539.00 per pill.  

Bernie compares the VA’s discounted cost with the cost of $900 per treatment in developing countries.  Calling these sweetheart deals with foreign governments, Bernie asks “…is it really fair that these countries receive such a generous–and affordable–price while our veterans do not?”  The VA has had to ask Congress for $1.3 billion to treat veterans with HCV.  The VA is also going to be forced to ration the medication. There are approximately 174,000 known HCV patients but it’s not clear to me what percentage of them have chronic, active infection.  42K vets in VA care are estimated to also be infected but are as yet untested.

With characteristic chutzpah (in the positive sense) and the U. S. Constitution as his shield, Sen. Sanders doesn’t mince words in his written criticisms of Gilead. (And that’s why Vermonters will keep the ornery and independent Bernie Sanders in office for as long as he wants to serve.)  On the issue of corporate greed he says:

…Drug companies charge what they think the market will bear.  Gilead clearly made the calculation that they could charge excessive prices for this ground-breaking drug and that the federal government will pay.

We’re looking at a company that is milking a cash cow for everything it’s worth. Gilead could give Solvaldi to the VA and the impact on their profits would be marginal.

Companies like Gilead are gouging the American consumer and the American taxpayer and they are ignoring any sort of moral obligation to help very sick people access life-saving medications…our veterans deserve better.

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Information from the Vermont Historical Society: “Ira Allen designed the Great Seal of Vermont. Reuben Dean carved the image. Vermont adopted the seal in 1779, before Vermont became a state! Vermont used a different seal from 1821 to 1937. Then Vermont chose Allen’s seal again. The pictures in the seal show things that were important to the settlers. The cow and the wheat represent farming. The trees and the wavy lines represent mountains and lakes. The tall tree in the middle is a pine tree. Some people say the pine tree represents freedom from the king of England. “Freedom & Unity” is Vermont’s state motto. This reminds us to protect our freedom. But we must also work together as a state.

 

We’re all going to be footing these bills (VA, Medicare, DoD, Medicaid, private insurance, prisons, etc..).  I was pleased to note that the only exposures to HVC infection Bernie mentioned for olders vets were from blood transfusions and reused needles (verbally) with special mention of combat exposures (written).  Recall my post linking to a  1973 official study that showed that IVDU drug use in Vietnam was rare. The VA says that those not infected decades ago, that is, most NEW infections they’re seeing (20K per year), are from IVDU.  Drug addiction is horrible in itself but they must to get these vets into addiction treatment first (and clean) before they can receive anti-virals.  So there is hope in these urgent interventions.

Read other testimony here.  Other notes:

VA’s Dr. Valentino’s testimony (around 39 minutes) gives an overview on new meds in planning and challenges.  If Congress gives $1.3 billion for the new HCV treatments, only 25-35,000 veterans can be treated at current prices.  The high cost of these drugs is not sustainable for the VA. Rationing in the private sector is also taking place.  R & D costs for the product were only about $100 million and manufacturing costs are about $150-250 per person. How do we get to $84,000 per person, asks Bernie.  The answers: the patent monopoly, “escalator pricing” with no relationship to R & D costs, and desperate people. This situation is not rational, efficient, justified or moral.  Medical tourism is discussed and is something insurers are even looking at.

I’m looking forward to working with Bernie’s staff on HCV veteran issues when we return to Vermont in a few months.  If the cost of these drugs become affordable, and  HCV-veteran research doesn’t stall, I think  we have a shot at having HCV recognized as a presumptive disease associated with bucketmilitary service for many Vietnam-era veterans before we kick the bucket.

 

 

 

Posted in Guest authors, HCV Health, Sofosbuvir, VA Medical Mysteries Explained | Tagged , , , , , , , , , , , , , , , , , , | Leave a comment

LZ CORK–2015-DOING THE PUYALLUP

DSC01108I’ve looked forward to this day for almost eight months since I was told of Butch’s plight by my fellow Key Peninsula Veteran Christine Copeland. She is Best Friends for Life (BFL is one step above BFF) with Butch’s daughter Carol who was born while he was in-country in December 1968. 

Representative Derek Kilmer, who helped prod the Air Force Board of Corrections into disgorging my long overdue medals, immediately stepped up to the plate and worked miracles for us. Once we were armed with the correct names of the KHA (Killed by Hostile Action and now abbreviated as KIA) that night, it was easy to prove that Butch not only was entitled to his Purple Heart but the Combat Infantryman’s Badge (CIB) as well. Sadly, voices from the grave often speak louder and more forcefully when proof of valor is required. This was true of 2nd Lt. Barry Kellenbenz and PFC David Balzarini on that night. The US Army wasn’t going to award this on a grin and a handshake.

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Above from left to right: Steve Vermillion, Alex Graham, Butch Long and Christine Copeland (all Veterans).

It all came together yesterday afternoon among family and close friends in Puyallup Washington. Shortly after two o’clock, Rep. Kilmer pinned on the CIB, the Purple Heart, his Army Commendation Medal and the Vietnam Service Medal. His daughter Carol pinned the Vietnam Campaign Medal and the Cross of Gallantry with Palm Unit citation on his right breast. As the Republic of Vietnam is no longer in existence, I suspect the US Government doesn’t cotton to it’s elected congressional members awarding medals that antagonize the present Democratic Republic of Vietnam. Whatever the case, it’s a long overdue celebration of one of America’s heroes.

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Above: Butch and family gathered around him.

I also delivered all your donations for Butch’s new upper dentures which were inadvertently tossed in the trash during his ICU visit over Thanksgiving week. Nick Carr, Representative Kilmer’s assistant for all things VA, found Butch a denture clinic who offered to do it for $500 dollars. Oddly enough the contribution came to $510.00 so he has enough to buy a steak dinner at Applebee’s after he’s armored up. Jeri Berlanga of the Parkland Denture Center was the outfit who generously offered to do this at far below cost. Apparently they have done so in the past under similar circumstances. This speaks volumes to their commitment to Veterans.

We still have a long way to go to get Butch his deserved VA compensation but we’re running into flak trying to get his claims file. It’s difficult to fight for your entitlement in a game of Indian Poker where you don’t know VA’s hole cards.

I also wish to thank Steve Vermillion (Dustoff 40) for his presence at the ceremony representing all our Air Evac personnel who so bravely risked their lives to get the Butch’s of that war to prompt medical attention that fateful night.

Yesterday’s actions represent how my Band of Brothers from the Vietnam War choose to honor and empower our own wounded warriors. We do it hands-on rather than to hand them off to other agencies. This is as it should be. We’re all in this together. No one is more or less entitled by their rank-be it officer or enlisted. Thank you -all of you- from the bottom of my heart for your outpouring of support for Butch and a special thanks to Bob Lockett for shining so much light on what transpired that night 46 years ago. Seems he doesn’t have any trouble remembering which chopper he was in or where he was when the balloon went up January 18th, 1969.

A special thank you also goes out to Shawn Kequom for her legal firm’s donation to the Key Peninsula Bischoff Food Bank, too.

2015-02-14 14.19.39

 

Left to Right:  Barbara Long, Christine Copeland, Butch Long, Alex Graham and Representative Derek Kilmer.

Posted in All about Veterans, From the footlocker, Inspirational Veterans, KP Veterans, Vietnam War history | Tagged , , , , , , , , , , , , , | 11 Comments

Veteran Choice Card recent headlines and updates

A new controversy is brewing about the allocation of these choice funds since use as been light.  On the other hand, my Marine just got his card.  I think we should keep an open mind to see what Sec. McDonald has to say on this subject. It is counterproductive to have funds sitting unused that could be used to say, house more homeless veterans and their families immediately. As we know, the financial, physical and emotional crises veterans are under are significant.  On the other hand, it’s a brand new program and the roll out has been rough going for some:

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Image source: American Legion Click image to read comments from frustrated veterans.

A commenter to the WSJ  and Am. Legion Hiiumaa wrote:  “I am priority 1, I live 99 miles from the VA hospital I go to,I must make my VA doctor appts 45 days in advance, I am 100% service connected, and the last day of January, I received a card ‘Choice’ in snail mail. I have made several phone calls, for hours, to the phone numbers on the brochures that came with the card and ‘they’ are STILL trying to decide if I qualify for Choice benefits. I am at a loss!  (To read more, go here.  She doesn’t have a car.)

Here are a few miscellaneous links to opinions and news from around the web:

2/2/15 Rep. Jeff Miller,  Miller Statement on The President’s VA Budget Request

2/13/15  Washington Post (blog):  Far fewer veterans use choice card and private health care than expected, VA says

2/13/15  Exeter Patch: NH Reps. Work on Bi-Partisan Veterans Proposal, U.S. Reps. Ann McLane Kuster, D-NH, and Frank Guinta, R-NH, introduce legislation to stop cuts to Veterans Choice Card Program.

2/11/15  Washington Times: VA secretary: 24K vets have used Choice Card, Asks to reduce program funding

2/4/15  The Sun (CAL): Vets optimistic about new VA ‘Choice’ program

2/2/15 Wall Street Journal (blog).  Barack Obama Plan to Shift Veterans Choice Act Funds Faces Shelling on Hill

2/2/15 Military Times.com, White House plan increases VA budget

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image from military flickr stream

Well, that’s all for now.  Happy Valentine’s Day! 

 

 

 

Posted in Guest authors, VA Health Care, VA Medical Mysteries Explained, vA news | Tagged , , , , , , , , , , , , , , , , , , | 8 Comments

The post-1992 transfusion quandary with regard to blood safety

blood typesThe CDC estimates five million patients receive blood each year resulting in a total of 14.6 million transfusions per year.  People are uneasy when they have to be transfused.  The CDC is just one agency testing blood safety.  It is distressful to read statements such as this:

Improvements in donor and blood screening have greatly reduced the risk of transmitting disease through blood and blood products. However, transfusion-related infections with known viruses continue to occur, and new and emerging viruses pose potential new threats to the safety of the blood supply.

Medical researchers have determined that the risks of getting HIV or HCV from transfusions in the United States are reassuring.  The National Heart, Lung and Blood Institute writes: 

 Your risk of getting HIV from a blood transfusion is lower than your risk of getting killed by lightning. Only about 1 in 2 million donations might carry HIV and transmit HIV if given to a patient.

Hepatitis B and C. The risk of having a donation that carries hepatitis B is about 1 in 205,000. The risk for hepatitis C is 1 in 2 million. If you receive blood during a transfusion that contains hepatitis, you’ll likely develop the virus.

aids

Today, rarely from transfusions or transplants.

 NHLBI Biologic Specimen Repository’s web site allows to see what research has been done on transfusions, HIV, HCV and many other health issues using the specimens.  You will find a substantial body of work has been conducted over the last decades that has added greatly to scientific knowledge.

That said, should you or I consider post-1992 blood transfusions an important risk factor for viruses?  I have been debating this for five years since I spent a weekend in a hospital getting five units of blood. I was assured that I received safe blood but after lots of tests, they could not determine if I needed the blood because of my beta thalassemia or from a GI bleed from an anti-inflammatory medication I was on then.

What would stop me from getting tested even if I wasn’t worried about my transfusion? Would asking for a test make me look immoral or perhaps a hypochondriac? The fact is I’m not alone in avoiding the issue.  According to 2013 Kaiser Foundation data,  Percentage of Persons Aged 18-64 Who Reported Ever Receiving an HIV Test, about 43.7% have ever been tested.  A few numbers by state to ponder:  MN: 32.6 %; VT: 36.4%; WV: 38%.

 In 2013, the VA was treating 26,784 for HIV making it the largest HIV provider in the country. Yet veterans ever tested remain low.  According to this VA slide presentation in 2009, fewer than 10% of veterans in care had ever been tested for HIV.  In 2011, only 20% had been tested.

Medicare will pay for a one HCV screening if ordered by a primary physician or under certain other conditions here.  That removes a significant financial barrier. Medicare Part B will pay for an HIV screening once a year with these conditions here.

Why are Americans so reluctant to get tested?  Fear? Stigma?  Don’t we owe it to our grandchildren to take care of ourselves so we can be there for them?  And why don’t our doctors suggest screening if only for our peace of mind? Frankly, even writing this post about HIV and HCV screening stresses me out.   I need to go lie down now…monster

More related resources:

WHO Fact Sheet # 279 June 2014, Blood safety and availability

WHO 2009 booklet: Screening donated blood for transfusion-transmissible infections: recommendations

Avert HIV & blood Safety facts

NHLBI studies

How veterans volunteer to help save lives:
blood_donationsKudos to The American Legion members for their generous yearly blood drives!

I’m impressed and grateful for their hard work as unpaid donors.

 

 

Posted in Guest authors, HCV Health, HCV Risks (documented) | Tagged , , , , , , , , , , , , , , , , , , | 6 Comments

President Obama signs veteran suicide prevention bill today

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President Barack Obama signs the Clay Hunt Suicide Prevention for American Veterans Act during a signing ceremony in the East Room of the White House, Feb. 12, 2015. Stage participants include: Veterans Affairs Secretary Bob McDonald; House Minority Leader Nancy Pelosi, D-Calif; Sen. John McCain, R-Ariz.; Sen. Johnny Isakson, R-Ga.; Sen. Richard Blumenthal, D-Conn.; Sen. Joe Donnelly, D-Ind.; Rep. Timothy Walz, D-Minn.; Rep. Jeff Miller, D-Fla.; Rep. Corrine Brown, D-Fla.; Rep. Tammy Duckworth, D-Ill.; Susan Selke (Clay Hunt’s mother); Richard Selke (Clay Hunt’s stepfather) ; Paul Reickhoff, Founder and CEO, Iraq and Afghanistan Veterans of America (IAVA); Bonnie Carroll, President and Founder, Tragedy Assistance Program for Survivors (TAPS); Gary Augustine, Executive Director, Disabled American Veterans; and Jake Wood, Co-founder and Executive Director of Team Rubicon. (Official White House Photo by Chuck Kennedy) (I see the back of Bernie’s head!)

I’m glad to report that the bipartisan Clay Hunt Suicide Prevention for American Veterans Act,  was signed into law today.  It is named after Sgt. Clay Hunt, a Marine who suffered from depression and PTSD; he took his own life in 2011. The President’s full remarks here give the background of Clay and I found them sad and touching. Secretary McDonald’s remarks are also recommended reading here.

The VA is creating meaningful and thoughtful materials.   There is a brief, perfect PSA video called the “Power of 1” on youtube in which a Vietnam Veteran reaches out to a depressed younger veteran.  And this is a great image.

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We certainly practice the “power of 1” here on this small weblog-support group called ASKNOD; every comment, post, star, like, and words of encouragement are so valuable to us all.  I see signs like these that lead me to believe that the VA is “getting it” and that it may turn out to be an institution President Lincoln would be proud of.  I like the direction and organization that Sec. McDonald is applying to the VA because there is so much work to be done.

President Obama finishes up his remarks echoing the theme of mutual support.

So we’re ready to help you begin the next chapter of your lives.  And if you are hurting, know this:  You are not forgotten.  You are not alone.  You are never alone.  We are here for you.  America is here for you — all of us.  And we will not stop doing everything in our power to get you the care and support you need to stay strong and keep serving this country we love.  We need you.  We need you.  You make our country better.

So I thank all of you.  God bless our troops, our veterans, our military families.  God bless the United States of America.

Isn’t it great that our younger veterans will hear words of understanding and kindness denied to their elder veterans?

 

Posted in Guest authors, PTSD, VA Health Care, vA news | Tagged , , , , , , , , , , , , , | 3 Comments

Supporting the One and Only safe injection campaign

The CDC’s “One and Only One” safe injection campaign is accepted by public health professionals globally but the desire for a safe jet injection needless device are still very much desired by many as a means to prevent accidental needlesticks and for other noble reasons.  Some devices have been approved for limited use. A 100% safe jet injector may not be attainable so the public needs to learn what a safe injection is and isn’t. 

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The visual materials developed for this campaign are clear and attractive and in the public domain.

The website has also been updated with excellent infographics about single and multi-dose.  Their twitter feed is also good.

My awareness has been raised!  A while back, a doctor applied a topical gel before giving me injections.  A long Q-tip was dipped into plastic jar, then rubbed on my skin, then re-dipped into the jar (which I’m sure will be used with other patients).  It happened quickly and I didn’t think about it until later.  By applying the concepts learned from “the one and only one” campaign, I realize that a new Q-tip should have been use instead of double-dipping the old one and mixing my DNA into the gel.

Posted in Guest authors, HCV Health, HCV Risks (documented), Jetgun Claims evidence, Medical News | Tagged , , , , , , , , , , , , , , , , , , , , , | 2 Comments

HADIT.COM RADIO SHOW THIS MORNING @ 0800 ON THE LEFT COAST

haditlogo2007Jerrel and the boys over at our sister site at Hadit.com are having their radio show this morning. I got a last minute invite to attend yesterday afternoon. We’ll be discussing the ins and outs of the perfect Extraordinary Writ and what you need to succeed.

Everything you ever wondered about one -the history, the requirements and the relative paucity of  winning it will be discussed. Be there or listen to it after it’s archived.

The call in number is 347-237-4819. Wait for the prompt and press 1.

To get an idea of the process, take a gander at the progression of mine currently at the Court here. It’s a multipart series beginning with

https://asknod.wordpress.com/2015/01/04/cavc-the-birth-of-a-writ/

To listen to the show if you missed it, go to hadit.com and look on the right hand side down to here and click on 2/11 Blog.

Capture Hadit.com blog

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A few positive VA things to report

dog houseSorry for my recent silence but “life” has interrupted my online activities.  I would like to share that we had some good news from the VA all within two weeks.  #1 The most important event was that the NOD we filed for spousal support was granted without making us jump through hoops. We had a call from the RO asking for clarification on one date, was told that the BVA was granting it and to expect a letter within a week. Four days later, my old Marine was paid a small amount to take care of me within days (including back support).  I joked that he can afford to buy a nice dog house and chow with the extra funds but we do appreciate it nonetheless.

# 2.  My spouse received a paper “Veterans Choice Card” but with orders not to use it since he may not really be eligible!   He has to call first.  This was a surprise since we live about 34 miles from the VHA and not over 40 miles away.  He doesn’t expect to use it because here in the land of A Prairie Home Companion, the schedulers are efficient.  Still, it’s nice to have as a back up, especially when travelling.

#3.  He switched to the Met Life High Dental plan offered through the VA.  Unable to find a comparable plan for myself, I called them and was allowed to be added on to his with no hassle.  The premium is higher than the Delta plans but this one offers more value in the long run.

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“Do I look like a bug?” VA provides basic frames, not vanity fashion ones. UV shades clip on and fit well.

#4.  My spouse had a VA eye appointment was was told that he could get a new pair of glasses each year since he’s SC.  We had just purchased new lenses ($200) for an older frame he had so now he’ll always have decent eyewear and a back-up pair.  His eyesight went downhill after HCV treatment and ignoring his eyesight is not an option.

Meanwhile, I just found out that a surgical repair for a hiatal hernia I had five years ago has failed. I wasn’t expecting that news.  And my endoscopy itself was a nightmare because the meds didn’t put me to sleep and I gagged through the entire procedure.  I don’t know why the IV meds didn’t work this time or if this is typical.  Still, I’m glad I had the follow-up because everything looks good except the hernia.  I mention this common condition only because HCV can cause a wide range of digestive problems but hiatal hernias are sometimes the cause.  It’s something to ask about if digestive problems persist.

 

Posted in Guest authors, HCV Health, HCV Risks (documented), Medical News, VA Health Care | Tagged , , , , , , , , , , , , , , , , , | 11 Comments

NBC ROTORHEAD FAN CLUB–(NOT BRIAN’S CHOPPER)

imagesAfter watching an exposé on the history of Brian William’s mouth muscles misbehaving last evening, it seems his story has evolved like Neanderthal Man into Homo Sapiens. Predictably, from the progressive side of the aisle, his fellow newsmen are showing their solidarity with new bumper stickers that boldly assert Conflation Happens.

Well, we know this and this is why I feel Mr. Williams is getting a bum rap. The poor man is up at all hours of the day and night in different time zones all year long. I’d like to see any of you maintain a coherent diary of all that mental baggage. Besides, the horror of constantly being exposed to close quarters combat is extremely deleterious to his mental health. Twenty or thirty  three-day deployments is eventually going to take it’s toll. Army Psychiatrists even know this.

Which is why I propose we honor our downtrodden hero and begin a Fan club in his honor. Fortunately we can borrow from The National Broadcasting Company and utilize NBC to conflate with Not Brian’s Chopper. Since Brian is also such a knowledgeable reporter on small arms and RPGs, he’s a natural for a real rotorhead.

Fan clubs are a way to honor our heroes and show our continued appreciation for Ars Gratia Artis. Because news is such a dry subject, Brian has simply injected more pizazz and an element of perceived personal danger that gives it more relevance. I don’t think it personally detracts from his persona. Brian is such a giant among his contemporaries, it compliments him to lie. Few can get away with this and inadvertently end up enhancing their charisma.

Brian Williams, a loyal contingent of Veterans feels your pain. Therefore we officially commission a Fan Club in your honor. Official certificates for the Founding Members can be had for a small tithe.Here’s a preview of the official Certificate of Original Founding.

NBC Rotorhead Fan club

Posted in Stolen Valor | Tagged , , , , , , , , , , , , , , , , , , | 1 Comment