Day 25 dawns with a nagging headache. This is # 7 since beginning the new prophylaxis. Additional noted complaints include itching (yes Leigh, me too) in odd places never mentioned in public, anemia, idiopathic thrombocytopenic purpura on exposed arms, pruritus, dizziness, and RUQP. Mind you, I am not complaining. These represent minor inconveniences on the way to a longer life without the dragon breathing over my shoulder.
In other news, Diane C. remains SVR after a year. Mark (Hepsick) is SVR after 6 weeks and will be coming up on another SVR assessment soon,. My own first checkie-checkie for less bugs per square inch of blood will be next Tuesday. That will mark the one month milestone we all look forward to and dread simultaneously.
The reason I am such a prolific author today is because I had a phlebotomy yesterday. The check engine light has been on ever since. Seems when you’re anemic, removing another pint of blood has consequences. Mine is a push. Allow the contaminated AO blood to fester or pump it out. Either way, my Sovaldi minder is going to be in for a rush when she sees next week’s results. They do have a laissez faire attitude about all this and didn’t exactly tell me not to keep getting phlebotomies. What I find interesting is the poster on the wall at the blood bank. It clearly points out that you cannot donate any more frequently that every 57 days. How is it I can do a phlebotomy every 30 days-and have been since November 1992? The little black spots in the corner of my eyes are my constant companions now like my dogs. They follow me everywhere. And for those who wonder, that’s thirty one gallons of blood down the tubes. Well, they claim they’re throwing it away but you know how that works…
My heart goes out to all of you who were subjected to the triple-drug cocktail VA was pushing (VERTEX) when they knew full well that Sovaldi was on the horizon and active trials were in progress. Perhaps it was part of that VA scheduling snafu that’s in the news these days. Damn Vets refused to keep calling back in to keep their desires for treatment current. What’s a VA scheduler to do? Roger that. Create a ‘secret list’ so they don’t lose track of these lazy sons of guns. Some day they’ll want that appointment and it pays to have proof you were just doing your duty trying to keep up with their desires.
P.S. If anyone finds that ten lbs. I lost or misplaced, please send it back. I guarantee the postage.