squid_with_dragonRegistered: 08/15/10
Posts: 132 |
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05/09/11 |
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#1 |
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| I just have no idea how to handle this situation. I have always been in control of what happens to me. This time I feel that I am no longer in control and I just don’t know what I should do.While I was on unemployment I became sick every day. I went into the VA because that was the only healthcare I had access to and was diagnosed with Hep C. I had virtually no idea what the disease was or how I even got it. That was 18 months ago. The VA had me talk to person (not a doctor) who “handled” HCV and diabetes cases. I virtually got no information from that person. She merely said that I had 2b and that it was treateable. She set me up for a panel of stress tests to see if I could handle the chemo. She said they won’t do a liver biopsy unless the treatment fails. She also stated that she didn’t think I was into chirrosis because of the blood test results.
I did all of the stress tests, but my liver was never examined at all. They were going entirely off of the blood test. In the mean time I was appointed to a GS-11 position with a Federal Agency in the DOI. Which was good timing since my unemployment had just run out. The government moved me to my new job in a small town 900 miles to the West. That was last November 2010. I immediately signed up for Health Insurance and planned to work my HCV through the Federal Health Care Plan.
In the mean time I went into the VA outpatient clinic (small town) to get the results of the stress tests. The VA came back with a diagnosis of Stage 3 and that I passed all of the stress tests and should begin INT-RIBA treatment ASAP. Well as it turned out, the GS job there was a scam, a set-up whatever one chooses to call it. They had planned on getting rid of whomever was the unfortunate soul to walk through the door. It was a small jobsite and they aren’t the ones who hire for the positions. I was sent there by the State Office.
I was harassed from day one in order to force me to resign. I was stuck. I couldn’t leave for the obvious reasons. They fired me after being on the job for about 30 days. No mis-conduct. They merely stated in the termination letter that I was too dumb to learn at the pace that was expected of me. What-ever that was supposed to be! I had no money to move back to where I came from. I hocked my van to get a loan to pay for the move.
I came back to the small town that I left and rented a small house with my last paycheck. Now I am trying to find a job to somehow make some money before I become homeless next month. I signed up with the DOL DVOP program as a Disabled Vet to take part in their “intensive services” whatever that is supposed to be. I didn’t work there long enough to get unemployment benefits. The State DOL/DVOP rep is trying to connect me with people that are hiring, but I need some rent money like today.
On the upside I am getting some job interviews and one company has expressed an interest beyond the interview. So I am pursuing viable opportunities. The thing is I need to start the chemo soon and I have no idea how that will affect my ability to work. I am an office worker so the physical demands are not a problem with the job. At least the VAMC in Sheridan was willing to give me treatment. The PA there told me it could be “dicey” for the first couple of weeks, whatever that means! About the only information that I have been given is that the treatment will last for 6 months and I need to take a pill every day and get a shot once a week.
At least the VAMC in the other place was willing to treat me. Here at the VAMC in where I am now, they shut the windows and locked the doors! I talked to the DOL/DVOP rep today and discussed my health. I said: “okay I get a job, then what do I do? I need to start treatment as soon as a I can. I have no idea how the treatment will affect my ability to do the work or if I need any time off from work.”
Thanks to Mr. Nod on this site my claim for SC is on track. I just need some guidance on what I should do right now with no job and no income and no savings. I also don’t know how the treatment will affect my ability to work or what the risks to my health are. I have heard that the treatment is brutal and affects people differently. I have heard that having an auto immune disease when treated could kill a person. The VA is already compensating me for Rhuematoid Arthritis, but then recently they have tested and the VA now says I don’t have RA. |
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AZeeJensMom
Moderator
Registered: 01/05/09
Posts: 94 |
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05/09/11 |
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#2 |
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| Squid …….
Rough spot you are in but you are not alone. I would file for Vocational Rehab with the VA. They can assist you with job options, dental care while you are in their program and medical care (which you are already receiving). As for the treatment, it’s brutal for some and others its a cake walk. The single most important thing is attitude when you go into this. If you can assemble a support team to help you with things you might need done try and get that into place. You will receive support here and you can receive support from VA Services. If I were in your shoes, I would go to the nearest VA medical center and ask to speak with the Patient Advocate, they can assist you in finding out what is the right road for you to go down. Good you have your claim filed and NOD is providing the assist. My husband did 3 courses of Interferon therapy/treatment, he worked through all 3 but not as much…..we were lucky to be self-employed at that time and unlucky in that department as well as we had to hire someone to do his job within the company. it wasn’t easy….the 3 treatments (122 weeks total) were 3 different times, 3 different phases of the drug and the same outcome…..however, had he not done any of it, I would be single today. He is Stage 4 and cirrhosis now with many side affects of the cirrhosis but man, he keeps moving and somedays I don’t know how. He has learned what his new “feeling well” level is and it ain’t what it used to be that is for sure, but the alternative (no treatment) was pretty grim.
We are here for you in any capacity we can be. (((((((( Hugs ))))))
If you have more questions, post them. I will be out of commission for a couple of days but I will check in.
AZeeJensMom
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squid_with_dragonRegistered: 08/15/10
Posts: 132 |
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05/10/11 |
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#3 |
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| Thank you…I apologize for the self pity. I guess sometimes a person can work themselves up into a tizzy if there isn’t anyone to talk to about it. The DOL / DVOP rep gave me the name of the patient advocate here so I left him a message. Just got a bill from the VA for $25 for a bottle of Vitamin D that I got in the mail but never asked for. The pills are 1000u and I am already taking good vitamins that have 600u of Vitamin D. Now that it is spring time and I am actually getting some Sunshine, I don’t really even think that I need them.I really would like to see a gastro doc as I’ve never been examined by one yet, since all who have seen me for this disease so far are genereal pracs MDs or PAs. I have a feeling the VA here doesn’t want to treat me because they keep nixing my appointments to get something going for my treatment. I think I could go into treatment with a positive attitude if I could just get rid of this anxiety about no money to live on and start getting adequate care from the VA.
I got a call from my grand-daughter (Skype is a wonderful invention). Yesterday I took a drive out in country with my dog and watched nature. The hills are greening up and the trees are finally getting some leaves now. I really enjoy life just that the roadblocks to living a fruitful and happy life become frustrating at times! Thanks for the guidance and thanks for being here! 🙂 |
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NODManager
Registered: 11/22/08
Posts: 654 |
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05/10/11 |
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#4 |
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WWVD- What Would a Veteran Do?
SW/D- you have, quite possibly, one of the finest inventions of God (if there is One and I have no reason to believe otherwise). A dog has a memory of about five minutes with the possible exception of my Lab. She can find a tennis ball left under a sofa a week later.Dogs are marvelous for people in our circumstances. They are not judgmental and forgive you when you are mean or rude to them. I was in the VAMC for almost 9 months and my Mollypop was distraught beyond belief. As amazing an invention as they are, they do not deal well with your stress. By the same token, they will go out of their way to resolve your stress by trying to divert your mind from it. Whether this is intentional or not is immaterial. The results are what matters. Count yourself lucky in one respect if God has blessed you with one of these marvelous companions.
We certainly will do everything in our power to make sure your claim stays on track. We ask that you do everything to maintain your mental acuity and health. It’s not easy during this period of Obamanomics to obtain and hold a job. HCV is an insidious disease that often creates a miasma of despair and depression. Recognize this and prepare for it. AZ’s advice is very good. I would not have thought of it. That’s why I contacted her and asked her for advice on you. Women think beyond five minutes into the future unlike us.
We are a family in this together, not an archipelago of individual islands isolated from one another. While I may not have a lot and struggle financially, I would be honored to assist you if it becomes necessary. While a lot of other Veterans help sites offer what they purport to be assistance, none that we have come across care as deeply for our members as we do. We are probably the smallest Vet’s assistance group due to our singular, myopic focus on one facet of VA claims. Because HCV is in a different league from hemorrhoids, bunions and ingrown toenails, we tend to have a different perspective on it. Left untreated, the outcome is very predictable.
I received a call from a mother in N.Y. Sunday telling me her son- one of our members- had passed several hours earlier. What a horrible thing to have happen on Mother’s Day. He was 52. VA refused him a liver transplant until he had been cancer free for 2 years. He had less than 7 months to go. I had the privilege of helping him go from 10% to 180% and attain some small measure of dignity before he passed.
If your circumstances become overwhelming, please do not waste a minute getting in touch with me via the Private Messaging function we have established here. I would be proud to share that which I have with any Vet in dire straits. Usually that entails information, but desperate times demand desperate measures. At the end of the day it is immaterial whose fault it is that we find ourselves in the predicament we are in. The important thing is to survive until you get justice. Your dog will help you more than you know.
Get out in the sun, take the Vitamin D back and say “No thank you” and avoid concrete abutments. Your responsibility to your dog demands no less.
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squid_with_dragonRegistered: 08/15/10
Posts: 132 |
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05/10/11 |
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#5 |
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| Thanks for the picture! :-)I am really fortunate to have my dog for sure. He is a Brittany and he likes to use his paws. But he is the typical pointer “ball of energy”. His favorite game is Soccer. He does good batting the ball around except sometimes he cheats by picking up the ball with his teeth and running off with it. The ideal situation is to get my youngest grandchildren out to play with my dog. Then I can sit in a lawn chair and relax. 🙂 |
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NODManager
Registered: 11/22/08
Posts: 654 |
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05/10/11 |
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#6 |
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| Sorry. I had to hide Molly’s face so the VA wouldn’t recognize her. I still have claims before the BVA and I use her as a fake Service Dog for entertainment when I go to the VAMC. I’m sure you understand. I’m paranoid about these things. A man can never be too careful. |
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squid_with_dragonRegistered: 08/15/10
Posts: 132 |
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05/11/11 |
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#7 |
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| In looking over my medical records it appears i’ve got the smoking gun with the EMG tests. I had a third EMG test done at Balboa Naval Hospital in San Diego. That is 60 different needles from three different hospitals, two hosptials in Japan and one in CONUS!The needles if you don’t already know, are about 8 inches long and quite thin. Each needle is actually an electrode attached to a wire. There are 20 needles/electrodes. This ball of wires is attached to a machine that graphs nerve transmission. Today the needles are replaced if the patient is known to have HBV,HCV.HIV. Well, back in the early 80s they didn’t have replaceable EMG needles and they didn’t have the modern sterilization methods for the needles either.
Come to find out that sometimes EMG tests are needed to determine the extent of liver damage with Hep-C patients. It is entirely possible that they could fail to replace one of the 20 needles after an HCV patient is tested. And it is entirely possible that they could replace one that wasn’t properly sterilized after the last use. |
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NODManager
Registered: 11/22/08
Posts: 654 |
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05/11/11 |
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#8 |
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| Well, actually you have two smoking guns. The genotype is a dead giveaway. The needles are irrefutable proof of percutaneous risk, just as much so as if you had engaged in acupuncture. Just for shits and grins, throw in the jetguns as well. In for a penny, in for a pound,eh? When the evidence is decidedly in your favor, always pile more on. It’s just like dropping napalm. It’s the perfect exclamation point after a BLU 26/49. VA will undoubtedly fight this with an IMO. Getting the evidence in front of them early on is paramount. The genotype defense will soon become another presumptive or at least a determining factor in your and all Vets favor. It’s damn difficult to rebut that kind of coincidence. Most importantly, it worked for me so there’s ample proof it can win your claim. |
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squid_with_dragonRegistered: 08/15/10
Posts: 132 |
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05/21/11 |
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#9 |
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| Senex Senis DecrepitusWell I have exhausted all means available to me for getting financial assistance to keep from being homeless. As a Disabled Veteran I qualified for the Dept. of Labor DVOP program and was available to have access to their “intensive services”. Which has amounted to two suggestions:
1) That I color my hair before going into an interview
2) That I reduce my resume to two pages
I contacted the VA to see what I could do and it has been:
I’ll call someone….who will call someone else…..who will call someone. But no one has called since the last guy who said he was going to make a call.
I just don’t fit on their decision tree. I have six years of college and 30 years experience as an engineer and scientist. No mental illness, no substance abuse, highly educated with extensive work experience with numerous service excellence awards. No trouble with the law. I think I got a speeding ticket once. And I am a highly decorated, disabled Vet with an honorable discharge.
So I fit in the category of 1.6% of those Veterans who will become homeless and thus society says I am not in need of assistance. Not old enough to get social security and not disabled enough to get disability. I already have a college degree.
Since this last recession, depression, whatever, the corporations have figured out that they can hire people half my age who will stay at the job longer, for half the salary.
So I am in the process of getting my pup tent out, camp stove and sleeping bag and then climbing into the van with my dog and hitting the road. I will put my things into storage, have a rummage sale for what I can’t hock. Stop in to see the grand kids, get some food and just wander from there.
Two years ago things just started to go wrong. First my wife dies suddenly and tragically, then I lost my job because of the recession, then I got sick and was diagnosed with HCV. It has been a downward spiral from there. I moved around trying to find work and in the process my savings and investments were wiped out.
On the upside, the Government owes me a lot of money. The Government is hoping that I will give up or die off before they have to pay up, but I am planning on surviving to collect. Also, my liver isn’t in the best of shape but it isn’t that bad yet either. I will be alright during the summer, but may need to head South with the geese this fall!
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NODManager
Registered: 11/22/08
Posts: 654 |
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05/21/11 |
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#10 |
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| Senex senis aka decrepitus. You have dueling nouns. PM me with a timeline of your departure so we can at least get you some walk about funds. I’m serious. Nod’s motto is Discedere Verba et Opera VA (to learn the words and works of the VA). |
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squid_with_dragonRegistered: 08/15/10
Posts: 132 |
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05/21/11 |
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#11 |
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| Actually I have 40 days and 40 nights before this carriage turns into a pumpkin. Anything could happen between now and then. I am just preparing for the worst right now. The worst case back-up plan is what I have described. I still have some stuff to hock so I need to go beat the bushes and turn that stuff into cash.I was just really disenfranchised about all of these “Veterans Programs” that supposedly I qualify for are really just smoke and mirrors. These people are getting a pay-check from the Government when there really isn’t anything they can do. I think most of them are decent, good people who would if they could but that BS just ain’t in their manual!
Well if anything came out of this at least the VA gave me a doctor’s appointment to a general practice MD in August. The way things are going; I won’t be here for the appt but golly-gee I actually got one! 🙂
Sent my NOD off today…certified mail, return receipt requested! And I thank you for that Sir! 🙂 |
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NODManager
Registered: 11/22/08
Posts: 654 |
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05/21/11 |
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#12 |
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| Most importantly, you need a go to address for this claim or something will fall through the cracks. If you do not have one, get one or try to arrange one. We have assets if need be.
I have your address so I will send the aforementioned funds Monday. I hope it helps. Keep a positive mental attitude (PMA) about this. It’s a drag waiting for resolution but it will be forthcoming. I cannot speak for the time element so there can be no prognosis
This whole thing may be immaterial as I’m expecting the shittohitthefan shortly. The end of the world is today so I need to get to the liquor store. Earthquakes and Armageddon are best enjoyed shaken, not stirred.
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squid_with_dragonRegistered: 08/15/10
Posts: 132 |
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05/21/11 |
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#13 |
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| I will keep a viable address for sure…thanks for the heads up on that.I may have a cave in the badlands Fung shui ed before this is all said and done.
Just don’t slug down any booze BEFORE the big one hits! 🙂 |
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squid_with_dragonRegistered: 08/15/10
Posts: 132 |
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05/25/11 |
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#14 |
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| Well, I guess Armageddon gave us a pass this time. So I fathom to guess that the VA still has to deal with our claims. Got the green slip that the VARO got my NOD. Now it is a matter of getting some breathing room and playing the waiting game. My sister called yesterday and when she learned of my plight, she wanted to make me promise that I would go stay with her. That maybe an offer that I can’t refuse. She has a large ranch home out in the country. My dog would have plenty of rabbits and other critters to chase. Mr Nod should be happy to know that I will be within a hundred miles of the VARO, so I can make my hearings and such. That is relatively close for this part of the country.In reading some of the other posts here, I have come to realize that there are others who are less healthy and generally less fortunate than I am. I just want to say that I am sorry that you folks have to deal with this type of life event. When I get back on my feet and I will, I want to help out in whatever way I can. Thank you for being here and thank you for your time and effort when you all have your own pain and suffering to deal with. I will continue to pray for you and yours! J
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NODManager
Registered: 11/22/08
Posts: 654 |
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05/25/11 |
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#15 |
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| Wheeeeeeeeeeew, Doggies (in the immortal words Jed Clampett). That sure takes a load off our minds, sir. We worry over our members’ health, both physical and mental, when going through this phase of a claim. The waiting can become almost unbearable. Thank your lucky stars that you have that 4PD Brittaney that goes anywhere. You will survive this. We all do. It’s just one of the scary things about the disease that creates despair. Well, that and unemployment. Keep the email address up and running and be prepared to assemble the docs for the nexus to Dr. Ben. The rest is like waiting for the corn to fill out. Very, very slow. You should receive my snail mail today or tomorrow. I hope it helps. |
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