John Bisig– May 11, 2011
Gary Lupole– February 2012
Paul Burch– March 8th, 2016
Robert Lynn Davis– August 14th, 2016
I have taken Harvoni that the VA gave me I am now hepatitis free. My wife of 30 years has been diagnosed with the same hep c I had. The VA has admitted I got it from my military service so they should give the cure to my wife. Does anyone have a my knowledge of how to go about getting this done for her? Thanks Ray
Contact a VSO and ask them to arrange it.
What is VSO? Is it Veterans Service Origination? Thanks, Ray
Hi Raymond, how are you doing now? Wanda at: firstname.lastname@example.org
I have the chance to take the Harvoni w/ribavirin, I don’t have liver cirrhosis
or cancer, my blood tests are normal.
LOOKING FOR NEXUS LETTER TO HELP SUPPORT MY HEP C CLAIM ,I COLLECTING KNOW BUT THEY ARE TRYING TO SERVER
look above in black area for Dr Ben Cecils web site ….care of Nod. Thanks Nod for all you have done
Either you were in combat, Have PTSD and used IV drugs because of the PTSD or you had no risk factors and can claim jet air guns for the cause. Dr. Cecil is busy but he will get back to as he has time. He can write a nexus letter for you. His web site is to the right —->
On SLEEP APNEA
Link to a good scholarly article online for sides of interferon…
Anyone got links for scholarly articles for ribavarin and pegasys side effects? specifically, insomnia, hypopnea, sleep apnea, and gum disease?
Yes. Look in the subjects list under Interferon claims. Maybe use my search bar under the medal on the right and enter ribavirin. I’ve written a gazzilion things about it.
I’m not seeing where ‘interferon claims’ is located.
machts nicht, I found it!!
I have a veteran that 72 years old now and that’s been diagnosed with Hepatitis 20 years ago is there a way to start the process on the claim I’m not too familiar with the hepatitis filing a claim I need your expertise in this matter thank you Gio
Roger that. File on VA 21-526 EZ. What are his risk factors?
I was diagnosed with Hep C just over a year after I ETS’d back in 2000. Did the treatment for 48 weeks in 2003-04 (Pegasys and Ribivarian) . Due to my ignorance, I just recently filed a claim because I started having symptoms around 1998 while on active duty. VA granted 20 percent but I still have issues with the side effects from the treatment over a decade later. Filed for secondary claims for a variety of conditions caused by the treatment, but was denied all secondary conditions compensation. Any advice? Thanks
Yes sir. Tons of it. Filing a claim is Step one. Getting a nexus letter is Step 2. Without it, you will always lose. Click on the above widget in the black area that says ‘Nexus Bible’ to get an idea of what your doctor needs to write. We’ll be here to help you.
Thanks, I read through your nexis bible, I gave them all that paperwork from the beginning, initial bloodwork, tests, biopsy, and doctors notes throughout treatment. that’s how I got the 20%. so I filed a subsequent claim for conditions developed over the years post treatment, with medical paperwork as well. all those subsequent (secondary claims) got denied. if I read correctly, they attributed the conditions to hep c, NOT the treatment.
That’s where a good hepatologist is useful. They are well-acquainted with the thyroid cancers and DM2 being secondaries. Cryoglobulinemia, skin ulcerations, Crohn’s disease are the tip of that iceberg. The studies and treatise papers are out there on the subject. Finding them is the ticket. I got my doctor to write them all at the same time I filed for HCV. I waited for 6 years and then sprang them as claims. Not much VA could say. It was right there in the records.We do have Dr. Ben Cecil who can do this if necessary, too.
If you tell me the conditions I can find studies to support them.
Insomnia, Obstructive sleep apnea, receding gum lines (to include loss of teeth), gout (despite having normal uric acid levels), hypothyroidism
“Interferon-Alpha Induced and Ribavirin Induced Thyroid Dysfunction in Patients with Chronic Hepatitis C”
The obstructive sleep apnea is going to be a little tricky but you can tie it to insulin resistance (caused by interferon). I’ll get back to you on that.
For RECEDING GUM LINES and LOSS OF TEETH, here’s some quotes from different articles….
“5.7 Dental and Periodontal Disorders
Dental and periodontal disorders have been reported in patients receiving ribavirin and interferon combination therapy. In addition, dry mouth could have a damaging effect on teeth and mucous membranes of the mouth during long-term treatment with the combination of ribavirin and interferon alfa-2b.”
“Teeth and gum disorders, which may lead to loss of teeth, have been reported when this medicine is used in combination with interferon alfa or peginterferon alfa. ”
“This medicine may cause teeth and gum problems. This medicine may cause dryness of the mouth, and a dry mouth may damage your teeth and gums if you take the medicine for a long time. ”
“Dental and periodontal disorders
Dental and periodontal disorders, which may lead to loss of teeth, have been reported in patients receiving ribavirin and peginterferon alfa-2b or interferon alfa-2b combination therapy. In addition, dry mouth could have a damaging effect on teeth and mucous
membranes of the mouth during long-term treatment with the combination of ribavirin and
peginterferon alfa-2b or interferon alfa-2b.”
“Severe Stomatitis Complicating Treatment With Pegylated-Interferon
-2a and Ribavirin in an HCV-Infected Patient ”
hey buddy congratulations on your beating that dragon….now there will be a 3 month and 6 month labs then you will know for sure. I just did a 3 month and still clear. I’m happy for you and I pray for all of us clearing this nasty thing. Good Luck dude Ray
this is good news …..been on harvirin now for 6 weeks and can tell the virus has flown the coop.6 more weeks and fini…..you should have cleared the virus ..if so, now you have the rest of your life to live good luck stay healthy ray
now on my last 4 days (taking it twelve weeks Harmoni with Ribavarin) don’t detected my viral load.
started harvoni treatment in November no signs as of April VAMC St Louis
make an appointment with the gi clinic at your VA hospital …they want to interview you then there will be a follow up for getting the drug. Or wherever you are getting your care they can or should have a program where they apply for the drug from the manufacturer.Gilead Sciences make this drug . If you are poor you can qualify for the drug. but this is through private DR. you should be able to get it at the VA if your kidneys are ok. good luck
or you can get it the way nod did on the lower post
thank you for the info. I really mean that……none of the insurance co’s even know about it . My doc at the va said not yet thanks again
ust asking if anyone knows where someone can get a hold of this drug HARVONI the 1 pill therapy that costs 1000 bucks a pill. I only have medicare and the VA. Is the VA using this drug yet? getting short hcvet ray
Ray-I’m unsure how soon VA will pick this up. It’s $1182 a pill. Last I heard they were just beginning to prescribe Sovaldi with ribavirin. They’re about a year behind the times. If you have medicare, ask for a referral to a gastroenterologist and he’ll prescribe it depending on your stage and grade. Then wait for approval. Also contact Patient Access Network and apply for a grant . I got two that covered about 80% of what Medicare wouldn’t. Good luck.
thanks for the info going to GI Dr. in spokane and am hoping for the best,. am interferon intolerant ,did that but with terrible side effects
I started TX on November 13, 2014. I go to the VAMC in Salisbury, NC. I am GT1a, F4.
Fill in your details below or click an icon to log in:
You are commenting using your WordPress.com account.
( Log Out /
You are commenting using your Google account.
( Log Out /
You are commenting using your Twitter account.
( Log Out /
You are commenting using your Facebook account.
( Log Out /
Connecting to %s
Notify me of new comments via email.
Notify me of new posts via email.
This site uses Akismet to reduce spam. Learn how your comment data is processed.
ASK NOD - The Book, Just Released !
Enter your email address to follow this blog and receive notifications of new posts by email.
Join 540 other followers
Sign me up!